Blood Disorders

                    About Blood Disorders    Support Groups   Local information    Useful Websites

About Blood Disorders

NHS Website - provides information on various blood disorders.

Patient UK – Information leaflets on blood disorders; blood cancers

Leukaemia Lymphoma Research Fund - Provides patient information leaflets on blood cancers and related disorders. you can download or  order for free.

Separate pages of information on HIV and AIDS; Heart Diseases, stroke, infectious diseases and genetic disorders  

Local Information

Around Hounslow & Isleworth

Hounslow Thalassaemia and Sickle Cell Support Group (TASC): Improve the health and well being of those in Hounslow with Sickle Cell or Thalassaemia disorders through information, education, counselling and supporting both sufferers and carers.

Contact: Telephone: 020 8321 2449.Fax: 020 8321 2467. email: emma.quarshie@ealingpct.nhs.uk Address: Hounslow Sickle Cell & Thalassaemia Service.Thelma Golding Health Centre,92 Bath Road, Hounslow, Middlesex.

Sickle cell & Thalassaemia Service (Hounslow & Richmond)- Whitton Health & Care Centre, Percy Road , Hounslow TW3 6JL TEL: 0203 771 6092

London

Anthony Nolan Trust: Saves lives of patients with blood cancer and blood disorders.

Contact: 2 Heathgate Place, 75-87 Agincourt Road, NW3 2NU. Tel: 0303 303 0303

Blood Pressure Association - UK registered charity, that provides information and support to people with high blood pressure.

Contact: 60 Cranmer Terrace, London SW17 0QS Tel: 020 8772 4994. email: info@bpassoc.org.uk 

Leukaemia UK-  52 Portland Place, London WIB INH.  Tel: 0207 299 0722. email: info@leukaemiauk.org.uk

The Haemophilia Society: The Haemophilia Society is working for people with haemophilia, von Willebrand's or a related bleeding disorder and their families to secure the best possible care, treatment and support

Contact: The Haemophilia Society, First Floor, Petersham House, 57a Hatton Garden, LONDON, EC1N 8JG 
Helpline: 0800 018 6068, Tel: 020 7831 1020. Email: info@haemophilia.org.uk 

Hackney Sickle cell: Voluntary Self-help group. Gives Advice, information, support, welfare, education and advocacy.

Contact: 457 Queensbridge Road, London, E8 3TS.Helpline: 020 7853 6700
Tel: 020 7853 6700

The Haemochromatosis Society: Help, support and information for those affected by Haemochromatosis (Iron Overload Disorder)

Contact: Hollybush House, Hadley Green Road, Barnet, Hertfordshire EN5 5PR. Tel: 020 8449 1363

APS Support UK: Provide free factsheets about different aspects of Antiphospholipid syndrome (APS). Telephone: 0300 323 9943  Email: info@aps-support.org.uk

Hughes Syndrome Foundation: The Foundation aims to provide patient support through the use of the membership scheme which incorporates support groups and by providing links to other online support.
The Rayne Institute, St Thomas' Hospital, London SE1 7EH
Tel: 020 7960 5561.The contact number for more information is 08456 024384.

Sickle Cell Society: Provides information, counselling and caring for those with Sickle Cell Disorders and their families. Aiming to develop a range of services for children and families in the area.

Contact: 54 Station Road, London, NW10 4UA. Tel: 020 8961 7795/ 4006. email: info@sicklecellsociety.org

Lymphoedema Support Network: A registerd charity works for Lymphoedema sufferers. Contact: Lymphoedema Support Network, St Lukes Church crypt, Sydney Street, London SW3 6NH. Tel: 020 73514480.  email:admin@lsn.org.uk

Thrombosis Research Institute: Contact: Emmanuel Kaye Building, Manresa Road, London SW3 6LR. Tel: 020 3198 9914  email: info@tri-london.ac.uk

Toxic Shock Syndrome Information Service (TSSIS): provides accurate and balanced information on Toxic Shock Syndrome (TSS). Contact: 24 - 28 Bloomsbury Way, London WC1A 2PX 

ITP Support Association: Aims to promote and improve the general welfare of patients, and the families of patients, with Immune (Idiopathic) Thrombocytopenic Purpura.

Contact:The ITP Support Association, The Platelet Mission, Kimbolton Road, Bolnhurst, Bedfordshire, MK44 2EL. Tel: 01234 376 559 email: info@itpsupport.org.uk

UK Thalassaemia Society: A registered charity formed by parents of children suffering from Thalassaemia.Contact:19 The Broadway, Southgate Circus, London, N14 6PH Tel: 0208 882 0011 Email:  office@ukts.org  

Other Local information can be found at London Borough of Hounslow

Useful Websites:

Blood Pressure Association

Circulation Foundation

Leukaemia Lymphoma Research Fund

Thrombosis Research Institute

Please let us know if links are not working or to add any other local support group information