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Cystic Fibrosis
Information Leaflets Local Information Useful Websites
The following links take you to the good quality information pages.
NHS Website: provides information on Cystic Fibrosis.
Patient UK: Information leaflet with pictures on cystic fibrosis
Cystic Fibrosis Trust: Information on Cystic fibrosis and living with Cystic fibrosis.
Patient UK - provide local support group information on various children's health conditions.
Cystic Fibrosis Trust: Helpline: A confidential service that enables anyone to obtain advice, support and information on any aspect of Cystic Fibrosis.Tel: 0845 859 1000.
Contact a Family (CaF)
:Contact a Family is a UK-wide umbrella charity providing advice, information
and support to the parents of all disabled children including rare disorders,
including assessments, benefits and special educational needs - no matter what
their health condition. Contact: Contact a Family, 209-211 City Road, London,
EC1V 1JN. Tel: 020 7608 8700. Helpline 0808 808 3555 or Textphone 0808 808 3556.
email: info@cafamily.org.uk
Local information can be found at London Borough of Hounslow
For more local support groups See also Child health page.
Please let us know
if links are not working or to add any other local support group information